These links are provided to support learning for staff and parents.
Parenting preterm infants
- Canadian Premature Babies Foundation – “Our Purpose is to prevent preterm birth through education and research, and support the best standards of care for premature babies.”
- Bliss – “…working to provide the best possible care and support for all premature and sick babies and their families.”
- Life with a Preterm Baby – This is a program for families of preterm infants and will serve as a support network following discharge as families transition from the NICU to their first months at home
- Miracle Babies provide an invaluable resource and support service for mums and families of premature babies.
Comprehensive NICU Parent Support
- Support4NICUParents.org – “…improving the level of psychosocial support provided to NICU parents – as well as improving training and support for those who provide care in NICUs.” For supplemental information, access the Journal of Perinatology December 2015
- Comforting Your Baby In Intensive Care by Professor Linda Franck – A booklet written for parents to help them learn about infant pain and the important role parents can play, in partnership with the health care team, to keep their baby comfortable during intensive care
EFCNI European Foundation for the Care of Newborn Infants
- Developmental Care of Newborns & Infants, 2nd Edition – Developmental Care of Newborns and Infants offers evidence-based guidelines for interdisciplinary, developmentally supportive caregiving for infants and their families, beginning with contemplation of the birth and continuing through the delivery room and neonatal intensive care unit experiences, the transition to home, and the time following discharge.
- Transformative Nursing in the NICU – introduces new, evidence-based care protocols proven to mitigate or reduce the profound morbidities and subsequent developmental challenges that afflict newborns in the NICU.
Infant Development Research
- Gibbins Sharyn RN/PhD, Hoath Steven B MD, Coughlin Mary RN/MS, Gibbins Alan and Franck Linda RN/PhD. The Universe of Developmental Care: A New Conceptual Model for Application in the Neonatal Intensive Care Unit. Foundations in Newborn Care. 8(3): 141-147.
- Coughlin Mary RN/MS, Lohman Mary Beth OTR/BCP and Gibbins Sharyn RN/PhD.
- Reliability and Effectiveness of an Infant Positioning Assessment Tool to Standardize – Developmentally Supportive Positioning Practices in the Neonatal Intensive Care Unit. Newborn and Infant Nursing Reviews. 2010. 10(2): 104-106.
- Coughlin Mary, Gibbins Sharyn and Hoath Steven. Core measures for developmentally supportive care in neonatal intensive care units: theory, precedence and practice. Journal of Advanced Nursing. 2009. 65(10): 2239-2248
- Quraishy Karyn MSPT/CEMI/CST, Bowles Susan M DNP/RNC-NIC and Moore James PhD/PT/PCS. A Protocol for Swaddled Bathing in the Neonatal Intensive Care Unit. Newborn and Infant Nursing Review. 13: 48-50.
- Coughlin Mary RN/MS, Lohman Mary Beth OTR/BCP and Gibbins Sharyn RN/PhD. Reliability and Effectiveness of an Infant Positioning Assessment Tool to Standardize Developmentally Supportive Positioning Practices in the Neonatal Intensive Care Unit. Newborn and Infant Nursing Reviews. 10(2): 104-106.
- Altimier Leslie RN/MSN/DNPc/NEA-BC and Phillips Raylene M MD/MA/IBCLC/FAAP. The Neonatal Integrative Developmental Care Model: Seven Neuroprotective Core Measures for Family-Centered Developmental Care. Newborn and Infant Nursing Reviews. 13: 9-22.
- Bracht et al. 2013 – FICare parent education
- Galarza-Winton et al. 2013 – FICare nursing education
- Jiang et al. 2014 – Parents as practitioners in preterm care
- Lee and O’Brien 2014 – Parents as primary caregivers in the NICU
- Macdonell et al. 2013 – Engaging veteran parents in FICare
- O’Brien et al. 2013 – FICare pilot study
- Warre et al. 2014 – Parents as the primary caregivers for their infants in the NICU
- FICare Cluster RCT Protocol (pending)